The liminal self in people with multiple sclerosis: an interpretative phenomenological exploration of being diagnosed.
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STRICKLAND, K., WORTH, A. and KENNEDY, C. 2017. The liminal self in people with multiple sclerosis: an interpretative phenomenological exploration of being diagnosed. Journal of clinical nursing [online], 26(11/12), pages 1714-1724. Available from: http://dx.doi.org/10.1111/jocn.13593.
Aim - to explore the lived experience of the meaning of being diagnosed with Multiple Sclerosis on the individual's sense of self. Background - The time of leading up to and immediately following the diagnosis of Multiple Sclerosis has been identified as a time period shrouded by uncertainty and one where individuals have a heightened desire to seek accurate information and support. The diagnosis brings changes to the way one views the self which has consequences for biographical construction. Design - A hermeneutic phenomenological study. Methods - In-depth qualitative interviews were conducted with 10 people recently diagnosed with multiple sclerosis. The data were analyzed using interpretative phenomenological analysis. Findings - This paper presents the three master themes: the 'Road to diagnosis', 'The liminal self' and 'Learning to live with Multiple Sclerosis'. The diagnosis of Multiple Sclerosis may be conceptualized as a 'threshold moment' where the individual's sense of self is disrupted from the former taken-for-granted way of being and propose a framework which articulates the transition. Conclusion - The findings highlight the need for health care professionals to develop interventions to better support people affected by a new diagnosis of Multiple Sclerosis. The conceptual framework which has been developed from the data and presented in this paper, provides a new way of understanding the impact of the diagnosis on the individual's sense of self when affected by a new diagnosis of Multiple Sclerosis. This framework can guide health care professionals in the provision of supportive care around the time of diagnosis.